A2. Adapting Care for Each Child
These recommendations are for all responders to adapt care to address each child’s needs.
Adapt care to each child’s needs and circumstance. Gathering information about a child victim’s circumstance allows responders to provide customized interventions that meet the child’s needs, as well as investigative needs. Understanding the child’s circumstance includes looking at obvious facts (e.g., the child’s developmental level, the nature of the sexual abuse experienced, and child’s reactions to it) and beyond those factors (see the table below). The goals are for responders to acknowledge and appreciate the whole child and be sensitive and inclusive in their interactions with each child.
Examples of Differences in Circumstances for Child Victims |
|
Characteristics/Background
|
Sexual Abuse Experienced
Community/Societal Issues
|
Do not press children or caregivers for this information during the exam process beyond what is essential for providing medical forensic care (See B5. Medical History). It is inappropriate to ask about some information, such as immigration status or sexual orientation. It is more important to be guided by what children and caregivers self-identify, as well as what is observed (avoiding subjective interpretation of behavior observed).
Child victims have varying levels of tolerance for interacting with multiple unfamiliar adult responders. Some children may become irritable (especially younger children who are used to a routine schedule), frightened, or overwhelmed. Building rapport with children from the first interaction is critical to increasing their comfort level. (See below for communication strategies).
Assess these fundamental communication issues early in the exam process in each case:
- Evaluate children’s development level so that appropriate language is used. Developmental level and language skills and preferences must be factored into responders’ decisions regarding how to build rapport with children, as well as the scope of information that is communicated to and sought from them (See B5. Medical History). Literacy of prepubescent children also must be considered when offering material (e.g., pictures may be more appropriate than words for younger patients).
- Identify if there is a need for language assistance or other accommodations to allow a child and/or caregivers to clearly and fully communicate with responders during the exam process. To facilitate provision of language assistance and communication-related accommodations, health care facilities and other responding agencies should have policies in place to (1) work with children and caregivers to identify if a need exists for such services and, if so, to determine specific needs; and (2) arrange for those services (e.g., specifying who and how to contact, what should happen once a request for services is made, and who can approve the cost of securing these services). Agencies and facilities should develop service agreements with those providing language access and accommodation services in order to provide prompt access when needed. At a minimum, agreements should specify: protocols for requesting services; response time to such requests; who will provide services (certified and qualified individuals); how to determine if a particular service provider is a good fit for a case; and personnel training needed prior to service provision.
NOTE: See below for more discussion on arranging language services and other communication accommodations. Pages 35-36 provide “Tips for Arranging Language Services” and page 37 provides “Tips for Arranging Other Communication Accommodations.”
Tips for Arranging Language Services |
|
|
|
|
|
|
|
|
|
|
|
Tips for Arranging Other Communication Accommodations |
|
|
|
|
Although it is impossible to know all cultural and linguistic issues that may impact the care of any individual child, take general measures to promote culturally and linguistically appropriate care during the exam process (Weaver, 2013). A few key actions are offered below (adapted from Weaver, 2013):
- Recognize that everyone has biases that can negatively impact their ability to provide high-quality care for all children. Work to overcome personal biases.
- Consider how historical oppression (racism, sexism, ableism, audism,[9] classism, homophobia, religious persecution, etc.) can impact care provided and identify approaches to create conditions that are more just for all children served.[10]
- Understand that each person is multicultural, bringing a blend of cultural and linguistic considerations. View multicultural identity of children and family members in these cases as a potential strength they can draw upon to cope with adversity in their lives, care for one another, and heal, rather than seeing another’s cultural beliefs and practices as only presenting challenges to the response process.
- Provide the type of care preferred by each child.
- Recognize that evidence-informed care is only as good as the diversity of populations sampled for research and that it needs to be balanced with child-focused, victim-centered, and trauma-informed principles of care. [11]
Generally speaking, CULTURE is a body of learned beliefs, traditions, and guides for behaving and interpreting behavior that is shared among members of a particular group (Blue, n.d.). In this protocol, a cultural group refers not only to ethnic or racial groups, but also other groups with distinct cultures. Examples include faith communities; Deaf and hard-of-hearing communities; lesbian, gay, bi-sexual and transgender individuals; immigrants; refugees; the homeless; military personnel and their dependents; and individuals in detention settings, foster care systems, boarding schools, and other residential settings. One culture may be closely connected to another (e.g., an ethnic group may be rooted in religious and/or spiritual beliefs of a particular faith community). Individuals often belong to multiple cultural groups. Note that cultural beliefs may or may not affect a child’s experience of sexual abuse, the related reactions of the child and caregiver, and preferred approaches to emotional support, healing, and justice (adapted from DeBoard-Lucas et al., 2013). If culture is influential in this regard, responders can offer to help children and caregivers to access cultural resources during the exam process and beyond.
Consider general communication strategies that can help build rapport with children across populations and facilitate culturally and linguistically appropriate care (see below). Building rapport with the child is essential not only to the effectiveness of the exam process, but also in reinforcing for children that there are adults who are safe and can be trusted. Ultimately, the message that responders should seek to convey is that all children deserve respect and are capable of healing from the abuse.
General Communication Strategies[12] |
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
Children’s communication skills, attention, and tolerance for interacting with responders may quickly deteriorate if they are feeling traumatized, tired, apprehensive, anxious, irritable, hungry, thirsty, distracted, uncomfortable, or negatively judged, or if they perceive their concerns are being minimized. For each child, consider what measures might aid in sustaining optimal communication with responders throughout the exam process. Acknowledge any apprehension the child has about the exam process or seeking help in general, and discuss what would help her/him be more comfortable.
On an ongoing basis, seek to learn about different populations and community settings. Responders should strive to optimize the exam process for each group. They should not assume that children and caregivers hold certain beliefs or have certain needs and concerns merely because they belong to a specific population or live in a specific setting. (See below to learn about four broad strategies and key actions that can optimize the exam process for specific populations and settings.)
Broad Strategies to Optimize the Exam Process for
Specific Populations and Settings
Strategy 1: Reach out to and partner with those who serve specific populations.
Strategy 2: Learn about issues facing specific populations of prepubescent children in the community.
Strategy 3: Plan across responding entities to meet the needs of specific populations of child victims and remove barriers they face in accessing timely, high-quality examinations.
Strategy 4: Evaluate the inclusivity and accessibility of forms and informational materials.
Broad Strategies to Optimize the Exam Process for Specific Populations and Settings |
1. Reach out to and partner with those who serve specific populations. Organizations, professionals, and community leaders that serve or represent specific populations may be willing to:
Engaging these entities and individuals to improve response to specific populations is not a one-time event in response to individual case needs, but an ongoing, planned effort. |
2. Learn about issues facing specific populations of prepubescent children in the community. For example:
|
3. Plan across responding entities to meet the needs of specific populations of child victims and remove barriers they face in accessing timely, high-quality examinations. For instance, identify/create:
|
4. Evaluate the inclusivity and accessibility of forms and informational materials.
|
This chapter offered general recommendations for adapting the exam process for each child. Additional considerations are noted throughout the protocol, both broadly and in reference to specific populations and community settings. See www.SAFEta.org for additional resources on working with child sexual abuse victims from specific populations and in specific community settings, as well as on issues of cultural and linguistically appropriate care.
Table of Contents | A3. Coordinated Team Approach |
[1] For applicable laws, see www.jointcommission.org/assets/1/6/ARoadmapforHospitalsfinalversion727.pdf (Appendix D of The Joint Commission document).
[2] See Joint Commission’s Standards and Elements of Performance for Patient-Centered Communication (2010) at http://medicine.osu.edu/orgs/ahec/Documents/Post_PatientCenteredCareStandardsEPs_20100609.pdf. Applicable standards include: human resources (HR.01.02.01), provision of care, treatment, and services (PC.02.01.21), record of care, treatment, and services (RC. 02.01.01), and rights and responsibilities of the individual (RI.01.01.01, RI.01.01.03). A federal resource for providing language services across a variety of settings is www.lep.gov. Kidsta.org offers links to resources available through that website, which have particular application for health care settings. The federal government suggests that recipients of federal financial assistance develop a language assistance plan: a process for identifying LEP individuals who need language assistance; information about language assistance measures; training for staff; notice to LEP persons; and monitoring and updating the plan. See Guidance to Federal Financial Assistance Recipients Regarding Title VI Prohibition Against National Origin Discrimination Affecting Limited English Proficient Persons, 67 Fed. Reg. 41455 (June 18, 2002).
[3] See Smith and Hope (2015) for a discussion of issues facing victims from the Deaf community to accessing services. Although it is not written specifically about child victims, it can be applied to this population.
[4] To clarify, interpreters convert information from one spoken language into another (or in the case of sign language interpreters, between spoken and sign language), while translators convert written materials from one language to another (Miller, 2012).
[5] Intellectual disabilities is a term used when there are limits to a person’s ability to learn at an expected level and function in daily life (CDC, n.d.). Levels of intellectual disability vary greatly in children. For more information, see www.cdc.gov/ncbddd/actearly/pdf/parents_pdfs/IntellectualDisability.pdf.
[6] Plain language is communication a person can understand the first time they read or hear it—language that is plain to one set of readers may not be plain to others (plainlanguage.gov, n.d.). For tips on developing messages and materials appropriate for targeted audiences, see the CDC (2014b) at www.cdc.gov/healthliteracy/developmaterials/testing-messages-materials.html.
[7] For more information on assistive and augmentative communication, see www.asha.org/public/speech/disorders/AAC/ (American Speech-Language-Hearing Association, n.d.). For further information, see the Assistive Technology Industry Association at www.atia.org/.
[8] If there are concerns about potential damage to an assistive device in the course of forensic evidence collection, consult with appropriate local/regional disability organizations.
[9] The notion that a person is superior based on the ability to hear or to behave in the manner of one who hears (Humphries, 1977).
[10] WCSAP offers a webinar and material (Guy Ortiz, 2008) exploring the concept of cultural competency and service provision strategies to help providers work with survivors of color. It is designed for victim advocacy, but has applicability across disciplines. See www.wcsap.org/culturally-relevant-advocacy-victimssurvivors-color.
[11] Definitions of cultural and linguistic competence have evolved over time (Weaver, 2013). Clinical cultural competence is “the ability of health care professionals to communicate with and effectively provide high quality care to patients from diverse socio-cultural backgrounds” (Betancourt & Green, 2010). Linguistic competence is “the capacity of an organization and its personnel to communicate effectively, and convey information in a manner that is easily understood by diverse groups including persons of limited English proficiency, those who have low literacy skills or are not literate, individuals with disabilities, and those who are Deaf or hard of hearing. Linguistic competency requires organizational and provider capacity to respond effectively to the health and mental health literacy needs of populations served. The organization must have policy, structures, practices, procedures, and dedicated resources to support this capacity” (Goode & Jones, 2009). A more general explanation of cultural competency is ensuring cultural applicability of services and options; and sensitivity to the role of culture in a person’s experience and decision making (adapted from Proffitt, 2010; NSVRC & RSP, 2013). See the National Center for Cultural Competence at http://nccc.georgetown.edu/foundations.html for further information on frameworks, guiding values, and principles for organizations to achieve cultural and linguistic competence. To help ensure cultural competency in the exam process, involved entities are encouraged to consider and evaluate (adapted from NSVRC & RSP, 2013): In routine services, how is the cultural competence of services provided assessed? Are involved agency and team structures, locations, designs, and/or décor representative of the communities that they serve? Are services available in the preferred languages of children and caregivers? Do responders receive training and supervision on cultural competency? Do responders collaborate with partnering organizations that have expertise in working with different cultures? Is there diversity in the staff of the responding entities?
[12] This listing was adapted in part from Day and Pierce-Weeks (2013), IRC (2012), and Weaver (2013).
[13] This awareness enables responders to: (1) not assume someone is male or female; and (2) engage in discussions that includes what name, pronoun, gender identity, and language that people use to describe themselves. It is also important for responders to understand that sexual abuse may be intertwined with the victims’ gender identity—e.g., people may experience violence due to their perceived gender identity. (M. Munson, personal communications, 2015).
[14] If responders do not understand children’s vocabulary, it is possible they might misinterpret their account of what happened. For example, in one case, a young girl was taught by her caregivers to call her vagina her “purse.” When she tried to tell a trusted adult she had been sexually abused, she said, “He touched my purse.” Not being aware of the meaning of the child’s words, the adult initially told her there was nothing wrong with someone touching her purse. Some child sexual abuse victims have considerable shame about or dissociation from their bodies. If it is too difficult to talk about their bodies, consider alternative means of communication (e.g., anatomically detailed dolls the child can use to point to body parts or paper and pen so the child can write or draw).
[15] For example, see the Minnesota American Indian Women’s Resource Center (2009) for a history on victimization and oppression of Native women and girls and its impact on current day commercial sexual exploitation of this population in Minnesota.
[16] For example, in cultures where elders have leadership and mentoring responsibilities, they may play an integral role in promoting safety and wellbeing of children as well as be instrumental in facilitating family healing from sexual abuse.
[17] For example, children may have disabilities that cause physical immobility and affects their ability to get on and off an exam table, among other activities. Prepubescent children may be receiving hormone treatment for pubertal suppression and anticipated subsequent gender transition (see Hewitt et al., 2012; Shumer & Spack, 2013; Spack et al., 2012).
[18] For example, a state school system on reservation lands, which has access to tribal children, may not follow tribal law on mandatory reporting of child abuse.
[19] For example, PREA standards for detention facilities set requirements for sexual abuse prevention, detection, response, and monitoring.
[20] The National Immigrant Women’s Advocacy Project is a source for related information and resources. Also see Dettlaff and Johnson (2011), Dirks-Bihun (2014), and Lin and O’Brien (2013).
[21] The field of universal design provides a framework to create printed materials that are accessible to the widest possible audience of users. See www.universaldesign.com/what-is-ud/. For example, intake form questions that ask about sex and gender should allow a response to be written in or include transgender and intersex options. Questions should appropriately distinguish between sexual orientation (the gender(s) to which one is attracted), gender identity (the internal sense of being female, male, or gender non-conforming), and biological sex. Any questions regarding religious affiliation should be inclusive of the diversity of faith communities in the area, and provide options for no affiliation and for writing in an answer.